I know all of these tubes look scary. They looked scary to us at first too. But once I learned what each of them are doing: giving him life sustaining medicine, keeping him breathing (because a side effect of the medicine is that it makes it hard to breathe), monitoring his blood, his heart, and his oxygen levels, I stopped thinking of them as scary and just became grateful for each line. Although they seem scary, these tubes are keeping our little Link alive until he has surgery to repair his heart. The beads hanging above his bed are courage beads, and each colored beads stands for a different triumph Link has accomplished in this tremendous battle to live he’s been fighting in his first few days of life.
He is such a sweet and precious and lovely baby boy, and he is strong.
His open heart surgery is planned for today (Thursday morning at 7am Eastern time). He has a congenital heart defect called Interrupted Aortic Arch. I wish I wasn’t so exhausted, or I would write you the whole amazing story about what brought Link to Atlanta and how thanks to several lucky and miraculous decisions and moments all adding up, he is here and safe and stable.
Had he not been born via C-section and needed to stay longer in the hospital. . . they might not have even noticed anything was wrong. . . Had the pediatrician not put his foot down and not allowed him to go home because he wasn’t feeding quite as much as he wanted him to. . .they might never had caught his defect in time. . . Had the right doctors not made a series of the right calls within a very short time frame. . . they might not have been able to get his duct back open. . .
If a series of miracles hadn’t happened over the last 48 hours. . . Our little Link might not be with us right now.
The surgeon informed us that he has about a 90% chance of surviving the surgery, so we are all feeling jittery but anxiously hopeful that he will pull through and have a full recovery. Essentially they will be sewing together two sides of the arch to create an seamless arch instead of the two separate halves that he has now. We are extremely lucky to have an incredible team of nurses and doctors at Emory monitoring Link 24/7 and giving him (and the family) the highest possible caliber of care.
and so, thank you to all of you who have been sending our family your thoughts and prayers and love. We’ve received an outpouring of support, and we couldn’t be more grateful. Please keep the love coming, and pray with us that he will make it through today’s surgery so that he can begin the tough recovery process that will need to happen over the next few weeks so that eventually he can make it back home and back into his mother’s arms.
All our love,